Happy Birthday to you….let’s sing

admin July 22nd, 2009

“Your birthday is a special time to celebrate the gift of ‘you’ to the world.”

Quote by Unknown Author

I have to say that over the years birthday parties have been less than exciting when anxiety becomes an uninvited guest. On Sydney’s first birthday we marked the event with a little party and the usual gathering around a princess cake singing “Happy Birthday”. After all we are marking a very special day for a very special little girl. But as the years went by the singing came to an end as it just made the celebration worse and the celebration itself was toned down to just immediate family.

Family and friends couldn’t understand why we just didn’t sing to her and have the festivities as usual but in our minds it wasn’t worth the upset. We acknowledged it but it was very subduded and under the radar. Even last year, Ehren was so happy to stick a candle in a banana muffin and sing her “Happy Birthday” and it was met with her cringing on the couch telling him to stop. It’s such a hard place as a parent because you want more than anything to celebrate your child, you want to be able to acknowledge and appreciate their accomplishments.

But this year was so different. We had four cousins over for a party, she requested the company, she picked out the loot bag gifts, she helped me to make the cupcakes and she even picked out her birthday cupcake with a candle. She greeted her cousins and before we finished getting everyone in the door the kids were off and running. When it came to presents and cake time she sat in the chair and had us all sing her “Happy Birthday” and when the candle blew out because of wind she asked for it to be relit so she could blow it out. With 12 people watching over her she gently unwrapped her gifts and even said thank you aloud to everyone. It’s these small steps, these moments that take your breath away and make you realize that it’s all worth it in the end and that some days we do find the pot of gold at the end of the rainbow. To be able to see the happiness in her eyes was a priceless moment that I will cherish forever.

This doctor rates tops in my books

admin May 27th, 2009

It took me a couple days to write about our experience at the ear, nose and throat doctor last week with Sydney. Doctors, dental and other such appointments can really rattle a parents nerves and that it did with us last Friday. It was suggested by the school that we go to the ENT to make sure that all is well in Sydney’s mouth and that her speech impediments aren’t a result of something in the back of her throat. They suggested it but I knew that we needed to see someone because Sydney’s bags underneath her eyes in the morning were a clear indication that sleep was not restful. If I ever needed to stay with her in the middle of the night the flips and flops were unnatural, it was like a fish out of water.

So we had talked about the doctor a few days before and I did explain that it would be as simple as opening up her mouth and letting the doctor look in with a light. This is where the fine line gets drawn, talk too much about it and let the anxiety monster reel around in her head until she goes nuts, or mention the facts, state the way things will be and then leave it until the actual day.

We got out of the house no problem, dropped off Ehren and did the morning drive. Only once did she ask me what she’d have to do again. “Nothing that will hurt” I reassured her. She was fantastic in the doctors office waiting and even walking into the room was fine. She sat on the chair and the doctor asked me what symptoms were ailing her and we talked a little bit beforehand. Here is where the doctors patience and understanding won over my heart. He spoke to Sydney directly and told her that he would be looking into her mouth just to see what’s there. He reassured her that it only takes a minute and mom can sit right beside you. He moved closer and she allowed him to look in her ears both left and right a little teary-eyed but she did it. Next was for her to open up her mouth and let him take a look. He moved in a little closer and Sydney promptly turned her head away and very forcefully said, “NO”. He explained again that it would be quick and all she needed to do was open her mouth. I tried to move her hair out of her face and she smacked my arm away and yelled, “I’M NOT DOING IT”. She began to ball. He took a step back and explained to her that we’d take a break for a moment and let her have a chance to take a breath. As I moved closer to him I explained how she has anxiety issues and doctors appointments are usually a bit of a crapshoot. Of course I made sure that she did not hear me as I was going towards the room in an attempt to move my purse. He spoke to me about the reasons why kids snore and how things work in the back of the throat. Sydney continued to cringe in the chair.

I moved again towards her and told her that she could sit on my lap if it would make her feel better and that she needed to do this. “NO” she said forcefully. The doctor again addressed Sydney and asked if he could look in her mouth very quickly and she moved her head left and right motioning a definative no. We continued to the other side of the room where he explained to me how to deal with the situation by giving us options. He realized that this was not going to work but the file wasn’t closed, he recognized that there were different ways to handle the situation. He suggested to get an x-ray as that maybe would work and give us a good indication of what needs to happen. He as well recognized that just like this appointment that may not happen either so there was another course of action which would be to get her into the hospital and sedate her in the operating room and if there is anything that needs to be done it would be. Suggesting that the later would be the most aggressive action of them all but as well if I had brought her in for a problem than I felt strongly enough that there was a problem.

He handed me a requisition for an x-ray and told me that perhaps not today but another day I could give that a try and hopefully we can get some solid answers. He then turned to Sydney and said, “Well Sydney, that’s it for today. You’re done and thank you for coming in”.

Doctors like these are worth their weight in gold. By some simple things he made me feel comfortable despite the fact that we never did get the examination complete. He gave me options and didn’t make me feel like a failure. By addressing Sydney directly he made it clear that in his eyes she was a person who deserved attention despite the fact that she was not happy about the situation.

When we got out of the office and into the car the tears were rolling off her cheek like a river. She was disappointed in herself. How do I know? she told me. “I’m sorry I didn’t do what you and the doctor wanted me to do but I was so scared.” I told her that I understood her fear. I also told her that we now have to go for an x-ray to check out her throat. “When” she asked still crying. “I’m not sure, I have to make an appointment”. “When I have to go I’ll try my best to get an x-ray” she said sniffling.

What do you do when you’re in that situation? The doctor also said that he doesn’t believe in forcing a child to do an examination because he wants it to be a positive experience and he doesn’t think forcing her by physically holding her down would help the situation. So, now the call is in for an x-ray let’s see if we get any further that way. Let’s hope.

Big brother woes

admin August 18th, 2008

It’s not easy being a sibling sometimes. I try really hard as a parent to treat my children equally albeit this social anxiety thing has thrown a bit of a kink into my parenting plans. I try, God knows I try to make sure that I give equal praise and equal punishments for poor behaviour but I sometimes think that I walked on a few more eggshells with Sydney. One would never know what exactly would trigger her off and I always felt mean to say, “Suck it up and deal with it” (not in exactly those words but you get my drift). So inevitably big brother sometimes gets the butt end of the deal.  He really is a great big brother. He tries his best to be accomodating, forgiving, understanding and encouraging. I never had siblings and I thrive on seeing the two of them get along and work together. Sometimes though despite his best efforts he just can’t convince her to join him and he gets so disappointed and frustrated.

That’s exactly what happened today. We went to an indoor carnival area for kids and when we got there Sydney did run ahead with her brother to look at everything. We waited in line for the tickets and the three of us discussed what things they wanted to do. He had it all planned out and kept asking Sydney, “Do you want to go on that with me?” “What about that?” as he pointed to each and explained what would happen.

It was our turn and as we approached the ticket counter it was clear that Sydney was more than happy to watch him and it was clear that he was disappointed that we’d be waiting on the sidelines as he went on things alone. Occasions like these are most frustrating on all of us. Sydney clearly is thinking things through a million times over because you can tell by the contemplative look on her face and her repetition of “I don’t know what to do”. Her brother tries with all of his might and sometimes it sounds like he’s in her head saying exactly what she’s thinking. I’m left to stand by Sydney and help her talk through the situation and watch what he’s doing. I feel like the literal meaning of between a rock and hard place!

It’s so tough when one child is outgoing and ready to leap even before he looks and the other is anxious and over thinks every last move.

In the end we convinced her to go on the carousel twice albeit sitting on the bench not on a horse but at least we were all together and then she went through the play area. He tired to get Sydney up the big slide and it was priceless, hand in hand they climbed up the big stairs as I waited for them at the bottom. How horrifying to hear your child crying through the vortex of the slide and being far away. The two of them came walking back down the stairs the same way they went up, holding the hand of his petrified sister who had a red face and tears streaming down to her chin. She came over to me and explained through the tears that she got up to the top and she just couldn’t do it. That’s okay she at least tried. Poor big brother, my heart went out to him. I think he really thought she’d go down the slide with him and he got so excited as the two of them tore up to the top.

Maybe one day she’ll surprise him, maybe one day she’ll run in front of him and catch him totally off guard. In the meantime I have to commend him for being the person he is and being understanding so much of the time. I’m sure his patience and tolerance willl serve him well in the future because I can guarantee you  that Sydney would not have come so far if he wasn’t who he is.

 

Highs and Lows

admin June 10th, 2008

So today was for sure a low and I think we’ve hit a bit of a low point. Over the last couple days we’ve gone through moments. These moments involve unexplainable bouts of crying and mood swings. We are all experiencing it to be honest. Syd’s put up a good front so far but now the countdown has begun and the stress of the end of school combined with people around her saying how much they’ll miss us I sometimes feel like crying.  But we have to move forward and if there is anything that I’ve learned lately it’s that I just have to ride the wave. Understanding that each day for the next little while might require a little more cuddling and a moment to let her just cry.  I’m beginning to see the fog come in and I sure do hope we can all ride past it and come out the other side!