Why I do what I do

“Without fear and illness, I could never have accomplished all I have.”
Edvard Munch quotes (Norwegian Painter and printmaker. 1863-1944)

Some of the most beautiful songs are written in the face of adversity, fear and isolation like Angel by Sarah McLachlan or Good riddance – time of your life by Green Day. Great things have been done in an effort to bring together people with a common cause. Take Megan’s Walk for example. A brave little girl who lost her fight to cancer at a very young age. Every year people gather to walk in honour of Megan. At the end of the walk there is a circle of hope.

The “circle of hope” around the hospital was overflowing with hands reaching out, faces turned up to the windows of the hospital, giving that big “hug of hope” to all those within.

I realize that in the grand scheme of things social anxiety is not nearly as devastating a journey in the life of a child as Leukemia, Brain Tumors or even Bipolar Disorder and Autism. What people need to realize is that Social Anxiety and other Anxiety disorders are still disorders and still require constant attention. I started last year with on a purpose. I did not want other parents to feel as hopeless as I did. I admit I have a lot to be grateful for and trust me when I wake up in the morning I am indeed thankful that we are all well and alive.

My analogy on social anxiety is much like a paper cut. It happens when you least expect it and it stings. It lasts for a long time and can be bothersome because it’s not big enough for a band-aid but causes an annoyance. Social anxiety is not as recognized or understood as other disorders and it is that very reason that I am trying to make some noise to make people realize that you need to treat situations and circumstances a little differently. Those who are experiencing life as I have I thank you for all of your comments and encouragement. So why is my life engrossed right now by social anxiety?Why am I doing this blog, have the facebook group and why am I trying to get a book published. Why would I expose our family’s situation in the Globe and Mail article? It is so that parents just like me, who feel like they are at the end of their rope and just need someone who understands to say it’s okay to feel supported and comforted.

For those of you who think that they would be happy and/or relieved if all they had to deal with was the occasional breakdown and worries of whether their child will walk into school or not than I have only one thing to say, perhaps this blog is not the right place for you.

I am in the process of doing wonderful things and I wouldn’t change my life for a second. I am a better person for all that I have been through and I hope that my parenting ability has reflected all that I have learned from the village of people who have encircled me.

Yes, to some my life has been a walk in the park but that doesn’t mean that I shouldn’t fight for what I believe is right for Sydney and all those other children who need help. So you’ll have to forgive me my friends if you don’t think my cause is worth the effort because clearly you haven’t spent the time with my daughter in recent months. All children are worth a tremendous effort and as long as I have people connecting to this blog and sending me emails telling me that what I have described is like I was sitting in their kitchen that very morning I will continue doing what I do.

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2 Responses to Why I do what I do

  1. charles says:

    I salute you for your efforts and hope you will continue to operate this blog. Unless someone has walked in the shoes of another–or their family– who suffers from social anxiety disorder, there is no true understanding of just how devastating it can be.

    Our son has it. He is medicated for it. He is calmer and not as distraught about being in social situations as he used to be, but his life has been severely impaired. He is 24 years old, a handsome young man with a winning smile and great personality, who basically goes to work (he works alone in a small store by the way), then comes home and sits in his bedroom. This is the only place he feels “safe.” He was offered a manager’s job at a different location of the chain store he works for–a store in a big mall, for twice the pay–but he couldn’t handle working in the mall, with all the noise, people, and confusion.

    Once his disorder accelerated, he lost his girlfriend. She didn’t want to sit in his room with him night after night. She wanted to party, go out and have fun. My son can’t do that–clubs, large gatherings with lots of people, etc. For a very healthy, attractive, smart early-20s guy, to not even think about dating?

    This is heartbreaking for us because he seems to be going nowhere. Lost in time. Will he ever find a girlfriend who can handle his disorder? Will he ever have a higher paying job? Will he ever live on his own? Will he ever have children?

    We love our son no matter what and will love him unconditionally and support him forever. Social anxiety can be life-changing for everyone involved. We should know…

    We appreciate the fine resources on this site and thank you for your efforts. Good luck with your loved ones too.

  2. admin says:

    Charles,
    What a wonderful comment. I want to thank you for taking the time to tell us a bit about your own family’s challenges and for your kind words of support. Your post alone makes it all worth while.
    If there is anything that I can try and help you with please let me know. I will also be having my therapist that works with Sydney on the blog in the next couple weeks answering our questions. If you have anything that you’d like to ask her by all means post it and hopefully we can get some answers.

    Take care and all the best,
    Darlene

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